NEW YORK (PIX11) – Hours after he was born, Shane Michael Haley, whose parents traveled around the country to complete a bucket list for him, died early Thursday.
His parents Jenna and Dan Haley posted this message on their Facebook page Prayers for Shane:
Today at 6:15AM, after meeting his entire family and being baptized into the Catholic faith, baby Shane died peacefully in his Mother’s arms .. we are so grateful for the time that we were blessed to hold and hug our son .. the support and prayers we have received from all of you have been amazing and we want to thank each of you with all our hearts .. Shane spent his entire life in the arms of people that loved him unconditionally and I don’t think you could ask for a more beautiful life then that .. he is home now with the Lord and will forever be our little miracle!
He was born with a fatal defect called anencephaly, which causes children to be born with without parts of the brain or skull. The condition affects just one in 5,500 births.
Children born with anencephaly have a life expectancy of hours to days, with some living more than a year in rare cases.
Aware of Shane’s condition, the Haleys decided to make the most of their son’s months in the womb, and invited the public to join in the celebration of his life. The couple took Shane to New York City, Ocean City and Wildwood, among others. More than 700,000 people have liked the page, which the Haleys used to share photos of the family picking pumpkins, exploring a petting zoo and Dan playing baseball while Jenna and Shane cheered him on.
News of Haley’s death, while expected, was heartbreaking for so many on Facebook who had followed the Haleys during the bucket list.
“As tears roll down my cheeks reading this I can’t help but smile. Your courage, your strength, your bravery is inspirational. Thank you for sharing your joy, love, your beautiful little boy, your heartache, and loss with all of us. You are in my thoughts and prayers. Fly high Shane, RIP little one. Thanks for touching so many,” wrote Shaunta Dunbar.
“You both are such an inspiration in so many ways……God chose you to be Shane’s parents, and he did a wonderful job in that……may he now wrap his arms around you in comfort at this time of sorrow…..God bless you both,” wrote Denise Stuard.