Single dad fights to understand daughter’s mystery illness

Posted at 8:11 PM, Feb 18, 2014
and last updated 2014-02-18 20:27:34-05

RUTHERFORD, New Jersey (PIX11) – Alex Dwek’s greatest joy is also his greatest despair.  His beautiful 7-year-old daughter, Maya-Rose.

When she was an infant, Alex and his wife noticed that Maya wasn’t sitting properly. Her legs were crooked.  Today, she can’t walk by herself, can’t talk and her illness can’t be explained. It’s a mystery even though Alex has taken her to many experts.

They’ve ruled out autism, Dwek says, “And CP. They’ve ruled out everything. One muscle biopsy, no, two muscle biopsies. A spinal tap she’s had. All negative. Everything was negative. Two MRI’s. Negative completely.”

Maya verbalizes with shrieks and squeals. And she can understand people who talk to her. She lights up when asked to give a smile.

Mystery Illness

Alex, a speech communication professional who lives in Rutherford, NJ, is struggling to care for his daughter and pay the bills as the emotional and financial tolls are everpresent.

“Financials are difficult because I can’t see all of my clients…It is difficult financially because I have to change my life around picking her up and paying people to be here to watch her. And she still wears even diapers.”

Dwek is asking everyone to watch the video in hopes of finding anyone who has seen a similar case, and perhaps can help him find treatment. This one of the stories that video tells much better than words alone can.

Alex wants any suggestions. Someone may know the answer that can help his daughter.

If you have any idea what might be behind Maya’s symptoms, please email me at

See more of Help Me Howard on his website, click HERE.