PHILADELPHIA, Pa. (PIX11) — Young parents who created — and carried out — an extensive bucket list for their son while he was still in the womb has welcomed their baby boy into the world.
Shane Michael Haley was born at 2:25 a.m. Thursday, according to the Facebook page “Prayers for Shane.” Now, his parents are savoring every moment they have with their newborn, who isn’t expected to survive long.
Just about three months into Jenna Haley’s pregnancy, Shane was diagnosed with anencephaly, a condition that causes babies to be born without parts of their brain or skull.
The neural tube defect is fatal and brings with it a life expectancy ranging from hours to days, with just a few cases where children lived more than a year.
When they learned the devastating news, Jenna and Dan Haley set out to make sure their son experienced all of their favorite childhood spots, knowing they probably would not have enough time with him to accomplish them once he was born.
They visited New York City, Ocean City and Wildwood. They took in Fliers and Phillies games. They went pumpkin picking, explored a petting zoo and cheered on dad-to-be Dan while he played baseball. All this while Jenna’s growing belly was the star in every photo.
And now that Shane is here, his parents are continuing to share their adventures — and their son’s progress.
Even the hiccups are monumental. The Haleys said Shane’s hiccups — the third time he’s had them so far — means he’s showing signs of swallowing.
“His little milestone is big news … He is one strong boy,” they said.